JOURNEY | Living With Hattr

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Caretakers
Basics
Our Journey
Self-Care
Questions

Group of friends having a moment

Feb 283 min read

Fundraising With A Team

27

Say Something. How To Advocate.

Feb 207 min read

Say Something. How To Advocate.

62

How Do You Feel & What Do You Do?

Nov 12, 20243 min read

How Do You Feel & What Do You Do?

17

Sometimes It Just Effing Sucks

Oct 18, 20242 min read

Sometimes It Just Effing Sucks

59

Practicing Love So You Can Love Better

Oct 11, 20244 min read

Practicing Love So You Can Love Better

199

How to Be a Friend: Rare Disease Edition

Oct 2, 20248 min read

How to Be a Friend: Rare Disease Edition

270

You've Got A Flexible Mind & Strong Heart

Sep 29, 20247 min read

You've Got A Flexible Mind & Strong Heart

111

Living With Light & Dark

Sep 25, 20243 min read

Living With Light & Dark

180

The Gift of Regifting

Aug 13, 20244 min read

The Gift of Regifting

38

How Not To Become An Energy Vampire

Aug 9, 20243 min read

How Not To Become An Energy Vampire

74

Can Tony Get Better?

Jul 29, 20244 min read

Can Tony Get Better?

241

There and Back Again

Jul 9, 20243 min read

There and Back Again

96

But Tony Doesn't Look Sick?

Jul 8, 20242 min read

But Tony Doesn't Look Sick?

164

The Accumulating BBs Theory

Jul 8, 20243 min read

The Accumulating BBs Theory

162

hATTR - Make It Simple Version

Jul 8, 20241 min read

hATTR - Make It Simple Version

145

What is hATTR and Amy-what?

Jul 3, 20243 min read

What is hATTR and Amy-what?

369

Building a Fundraising Team

Starter Kit for Living with hATTR

Forever, For Always – I Love You & Me

Fundraiser Update $10,000 Milestone Reached

The Cutest Thank You

Tony's First Medication Approved 🎉

How We Fell In Love

TONY
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