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DONATE TO TONY'S BENEFIT HERE

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What Can I Do?

We are so grateful to everyone who has reached out - asking: "What can I do?"

What Can You Do?

 

​We are in the middle of applying for financial aid where applicable and to the pharmaceutical companies for the Silencer and Stabilizer drugs. 

 

We've been accepted by Lend A Hand Up to use their portal, and they'll match 20% up to $5,000 of your donations.

 

We set up a Benefit Fund through Gate City, and you can donate directly there to Tony Skavlem Benefit.

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We're now applying for Tony's Stabilizer drug!

 

What will donations be used for?

Travel expenses to Mayo Clinic.

For gap coverage of medical costs.

And for respite care or childcare when needed.

3 Ways You Can Help
1. Give

You can give through Lend A Hand Up, or go into any Gate City Bank and deposit to “Tony Skavlem Benefit”

2. Send

Tony's love language is a tie between physical touch and words of affirmation. Sending him a video or a postcard he can hold and read would mean a lot to him right now.

3. Share

Share Our Story on your socials. Help us give more people the opportunity to be a part of Tony Living with hATTR.

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When you're facing a rare disease, it's easy to feel alone.

Thank you for coming with us for the journey.
OUR JOURNEY

DONATE TO TONY'S BENEFIT HERE

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