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DONATE TO TONY'S BENEFIT HERE

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What Can I Do?

We are so grateful to everyone who has reached out - asking: "What can I do?"

What Can You Do?

 

​We are in the middle of applying for financial aid where applicable and to the pharmaceutical companies for the Silencer and Stabilizer drugs. 

 

We've been accepted by Lend A Hand Up to use their portal, and they'll match 20% up to $5,000 of your donations.

 

We set up a Benefit Fund through Gate City, and you can donate directly there to Tony Skavlem Benefit.

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We got approved for the silencer in July!

We got approved for the stabilizer in September!

Now we need to try to manage pain and GI functions - we'll be going back to Mayo Clinic mid-October.

 

What will donations be used for?

Travel expenses to Mayo Clinic.

For gap coverage of medical costs.

And for respite care or childcare when needed.

3 Ways You Can Help

1. Give

You can give through Lend A Hand Up, or go into any Gate City Bank and deposit to “Tony Skavlem Benefit”

2. Send

Tony's love language is a tie between physical touch and words of affirmation. Sending him a video or a postcard he can hold and read would mean a lot to him right now.

3. Share

Share Our Story on your socials. Help us give more people the opportunity to be a part of Tony Living with hATTR.

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When you're facing a rare disease, it's easy to feel alone.

Thank you for coming with us for the journey.

OUR JOURNEY

DONATE TO TONY'S BENEFIT HERE

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