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What Can I Do?

We are so grateful to everyone who has reached out - asking: "What can I do?"

What Can You Do?

 

​We are in the middle of applying for financial aid where applicable, but availability is in limbo with the current administration.

 

We set up a Benefit Fund through Gate City Bank, and you can donate directly there to Tony Skavlem Benefit, or through this online portal that connects to the same benefit account.

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Good News On Our Journey

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  • We got approved for the silencer in July!
     

  • We got approved for the stabilizer in September!
     

  • Our online fundraiser with Lend-a-Hand Up just finished. Thank you to everyone who donated!
     

We'll be going back to Mayo Clinic mid-February.

 

What will donations be used for?

Travel expenses to Mayo Clinic.

For gap coverage of medical costs.
For medical adjacent supplies (not covered by insurance).

And for respite care or childcare when needed.

3 Ways You Can Help

1. Give

You can give at any Gate City Bank and deposit to “Tony Skavlem Benefit” or use this online portal, that connects to that account.

2. Send

Tony's love language is a tie between physical touch and words of affirmation. Sending him a video or a postcard he can hold and read would mean a lot to him right now.

3. Share

Share Our Story on your socials. Help us give more people the opportunity to be a part of Tony Living with hATTR.

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When you're facing a rare disease, it's easy to feel alone.

Thank you for coming with us for the journey.

OUR JOURNEY

DONATE TO TONY'S BENEFIT HERE

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