top of page

DONATE TO TONY'S BENEFIT HERE

116292227_10108159633740473_4605918323430627770_o.jpg

Living. with Amyloidosis

The Joy. Fear. & Hope of our Family's Journey

When you're facing a rare disease, it's easy to feel alone.

Thank you for coming with us for the journey.
Forever, For Always – I Love You & Me
Fundraiser Update $10,000 Milestone Reached
The Cutest Thank You
Tony's First Medication Approved 🎉
How We Fell In Love
Contact

GET IN TOUCH

Sue & Tony Skavlem

  • Spotify
  • TikTok
  • Youtube
  • Facebook

@livingWithHATTR

@livingWithHATTR

@livingWithHATTR

@livingWithHATTR

We'll Get Back to You Soon!

DONATE TO TONY'S BENEFIT HERE

bottom of page