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Sue & Tony holding hands on an adventure

Living. with Amyloidosis

The Joy. Fear. & Hope of our Family's Journey

When you're facing a rare disease, it's easy to feel alone.

Thank you for coming with us for the journey.

Forever, For Always – I Love You & Me
Fundraiser Update $10,000 Milestone Reached
The Cutest Thank You
Tony's First Medication Approved 🎉
How We Fell In Love
Contact

GET IN TOUCH

Sue & Tony Skavlem

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@livingWithHATTR

@livingWithHATTR

@livingWithHATTR

@livingWithHATTR

We'll Get Back to You Soon!

DONATE TO TONY'S BENEFIT HERE

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