Our Journey

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Group of friends having a moment

Group of friends having a moment

Fundraising With A Team

Feb 28, 20253 min read

Say Something. How To Advocate.

Say Something. How To Advocate.

Say Something. How To Advocate.

Feb 20, 20257 min read

How Do You Feel & What Do You Do?

How Do You Feel & What Do You Do?

How Do You Feel & What Do You Do?

Nov 12, 20243 min read

Sometimes It Just Effing Sucks

Sometimes It Just Effing Sucks

Sometimes It Just Effing Sucks

Oct 18, 20242 min read

How to Be a Friend: Rare Disease Edition

How to Be a Friend: Rare Disease Edition

How to Be a Friend: Rare Disease Edition

Oct 2, 20248 min read

You've Got A Flexible Mind & Strong Heart

You've Got A Flexible Mind & Strong Heart

You've Got A Flexible Mind & Strong Heart

Sep 29, 20247 min read

Living With Light & Dark

Living With Light & Dark

Living With Light & Dark

Sep 25, 20243 min read

The Gift of Regifting

The Gift of Regifting

The Gift of Regifting

Aug 13, 20244 min read

How Not To Become An Energy Vampire

How Not To Become An Energy Vampire

How Not To Become An Energy Vampire

Aug 9, 20243 min read

There and Back Again

There and Back Again

There and Back Again

Jul 9, 20243 min read

But Tony Doesn't Look Sick?

But Tony Doesn't Look Sick?

But Tony Doesn't Look Sick?

Jul 8, 20242 min read

Building a Fundraising Team

Starter Kit for Living with hATTR

Forever, For Always – I Love You & Me

Fundraiser Update $10,000 Milestone Reached

The Cutest Thank You

Tony's First Medication Approved 🎉

How We Fell In Love

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